Thank you to the Huddersfield Examiner for another lovely article. As part of their ‘Wish 2012’ campaign they will feature all the charities and organisations in Huddersfield that have joined up in the hope of receiving a share of £25,000. Today our very own HDSSG got their chance to shine:
FAMILIES who have children with Down Syndrome in Huddersfield have access to a parents’ network of advice and support.
The Huddersfield Down Syndrome Support Group has harnessed the latest technology to ensure they are constantly in touch.
An easy-to-use website, Facebook page and Twitter feed mean friendly help and advice is only a click away.
The group, which has some 40 members, is open to all Huddersfield parents with children from birth age to 21 years.
Communications officer Leanne Davies, whose six-year-old son Jack has Down Syndrome, said the group was run by parents for parents and always welcomed new members.
The group regularly holds social events and gatherings aimed at all the family including brothers and sisters.
Days at the seaside, impromptu picnics, trips to the zoo, swimming sessions and the much-anticipated annual panto visit are loved by the children.
The group, though, offers a great deal of practical help and advice for parents.
Leanne said: “The idea is that we can all share our experiences with each other.
“We all have different areas of expertise. For example some of us work in schools and can help with issues involving schooling.
“There are some great services available locally and we can help people access them.”
This weekend the group will launch Tiny Talkers, a six-week speech and language therapy programme.
The Sunday morning sessions will take place at The Watershed in Slaithwaite.
Due to demand from parents, the group has invested in training for one of their number, Bernie Egan, a mum of two children with Down Syndrome.
Bernie trained with Symbol UK and will deliver the programme to younger children first.
Leanne, 32, who lives in Oakes, said: “This is something that has come from parents.
“As we all know resources are stretched in the area and communication for our children is absolutely vital.
“Hopefully we will be able to continue to develop the programme as we go along.”
While the accent is on fun, the group is about so much more than that.
“It’s not just about days out,” said Leanne. “It’s about educating and empowering parents.”
To contact the group go to: www.hdssg.org.
Down Syndrome is a genetic condition which results in some level of learning disability and a characteristic range of physical features.
Learning disability significantly affects a child’s ability to learn compared with other children of their age.
It does not mean, however, that a child cannot learn at all.
IF YOU WOULD LIKE TO DISPLAY ONE OF OUR POSTERS PLEASE FEEL FREE TO COPY & PRINT THIS PDF – HDSSG token poster
♦ Thank you to Martin Shaw at the Huddersfield Examiner for the great write up.